My Parents

Greetings..

This post is hard to write but I feel I need to get it out.

My Mother passed away suddenly on January 28th 2011. We were not expecting it. She had not been ill. She had a massive heart attack around 3:30 in the afternoon on that Friday. Needless to say I was devastated. My Mom was my best friend and my biggest supporter. I love her so much and I miss her every single day! I felt I had finally come to terms with her passing. What else could I do? I can't change anything, I can't bring her back, I can't go back to Christmas of 2010 and spend more time with her. I can't call her on the phone just to say hello. I will never again hear her say on my voicemail. "this is your mother".. as if I didn't recognize her voice. I have begun to accept it.

The Sunday before Thanksgiving this year, 2012, I had been visiting my dad and my daughter. I was loaded up and ready to make the 2 hour drive home when my dad called me. He needed to talk to me in person and it seemed urgent. Instead of heading on home I turned and went to see my dad. When I arrived he was sitting on the bumper of his car smiling and twiddling his thumbs. He got in the van with me and I asked him what was wrong. He said he needed me to take him to town. I thought he was sick or hurting or something. So I said ok but what's wrong. He proceeded to tell me that the night before he was getting ice cream out of a container and his scoop broke. I thought maybe he had hurt his hand when that happened. Dad was 76 and he didn't move around real good. I said ok and again asked what is wrong? He said in a very serious tone.. 'I need you to take me to Wal-Mart so I can get a new ice cream scooper." I smiled and giggled and said "ok daddy... let's go get you a scooper". That was the last time my daddy will ever be in a vehicle with me. We all gathered for Thanksgiving dinner and had a wonderful time with him. The day after Thanksgiving Daddy sent us off to buy his Christmas gifts for everyone. While we were out we received a call that there was a fire at his house. We rushed home and when we arrive it was too late. My daddy had been burning leaves and he caught hisself on fire. He couldn't get away from it. We buried my daddy last Thursday.

I know I grieve for myself not for them. They are with God in Heaven and are having a joyous reunion. I can imagine my Mom drinking iced tea while my Daddy plays Spanish Eyes  on the steel guitar. They are both smiling and unburdened of the pressures of this world. I love them both so much and one day I will see them again!

Mom... Dad... I love you both, I miss you so very much. Thank you for loving me.

~ Sharon

A Letter to Addison

Welcome Miss Addison 

 



We have waited a long time for your arrival and we thank God for giving you to us. Your journey into our world was a struggle for you and your Mother. There were moments when I feared both of you might not survive. Honestly, I don't think I have ever been more frightened in my entire life and trust me little one I have experienced some truly scary things.



The Angels Danced the Day You were Born

Your Mother loves you so very much and she proved that to everyone by how bravely she fought to bring you to us. She never wavered once. She was determined to hold you, love you, care for you and show you the beauty of our world.

By God's Grace and your Mother's strong spirit you arrived. You were blue and  unmoving. I closed my eyes, as the doctor and the nurses worked. I prayed aloud to God to breathe life into your lungs. 

I was there with your Mother and Father when you took your first breath, opened your eyes to our world and shouted your triumphant cry. "I am here!!"

You were born on 11.08.12 and weighed 8lb 4.5oz. You are our first grandbaby and a true gift from Heaven. We all know what a fighter you are and we can't wait to watch you grow, learn and master your world.

Welcome to our world little one. You have no idea how much you are treasured and loved.

Thank you Lord for delivering this darling from your arms to ours.


~ Sharon

Heaven's Very Special Child

 

A meeting was held quite far from Earth!
It's time again for another birth.
Said the Angels to the LORD above,
This Special Child will need much love.

His progress may be very slow,
Accomplishments he may not show.
And he'll require extra care
From the folks he meets down there.

He may not run or laugh or play,
His thoughts may seem quite far away,
In many ways he won't adapt,
And he'll be known as handicapped.

So let's be careful where he's sent,
We want his life to be content.
Please LORD, find the parents who
Will do a special job for you.

They will not realize right away
The leading role they're asked to play,
But with this child sent from above
Comes stronger faith and richer love.

And soon they'll know the privilege given
In caring for their gift from Heaven.
Their precious charge, so meek and mild,
Is HEAVEN'S VERY SPECIAL CHILD.


by Edna Massionilla
December 1981

Introduction

Hello Readers,

This blog site will be dedicated to the parents of special needs children. I have long looked for a site that I feel is receptive and encouraging for parents like us. My goal for this blog site is to present information to help the newer parents to navigate through the maze and the chaos that comes with being the parent of a child with special needs. I know how intense the feeling of being lost can be and I would like to help ease some of those feelings for others.

I remember how scared I was the day I was told it was time for my son to leave the hospital. I was so afraid that I would not be able to care for him well enough to keep him healthy. Quite frankly I thought he would die under my care. That lead to a lot of sleepless nights until I gained a little confidence in myself. That was 15 years ago. I now KNOW I can take care of my son and I trust my instincts when it comes to his care. I also know that I am the best person to care for him as you are the best to care for your child.

Please take a look around the Prayer Room. I will be adding helpful links as we go along. There is also a section called Community Answers. In this section you may enter a question or an idea that you have and you can also answer questions. Please contribute to this section if you see a topic that you have experienced. With this site I want to present the knowledge we veterans have gained over the years and present it to those who are just now walking the path we have taken. There are things we veterans can learn as well.

If we all pull together and support one another we can thrive in our roles as caregivers for our special children.

Thank you for visiting and please come again!!

~ Sharon